Articles by: Maica Gugolati

Maica Gugolati is a researcher, author, and art curator who engages in experimental collaborations with artists from the Majority World. She holds a doctorate in social and visual anthropology. In addition to academia (anthropology and philosophy), she studied photography. She is co-editor of the Decolonial Dialogues educational blog and the African Diaspora journal, published by Brill. She is an affiliated researcher at the Institute of African Worlds, France, and a member of AICA Southern Caribbean. She works between contemporary art practices, performance studies and anthropology.

‘You Don’t Look Sick’

‘You Don’t Look Sick’

Abstract: ‘You Don’t Look Sick’ is a piece of visual-poetry about fibromyalgia, a chronic pain disease I have experienced for 16 years since the age of 21. Linearity cannot explain how pain dances in my body. Poetry, therefore, takes its place to transform the communication of my inexplicable health issue with GIFs of myself. More than 90% people affected by fibromyalgia are adult women. It is a gendered health issue that challenges classic medicine—its pathophysiology is still unclear. This work aims to start a conversation about empathy—how we know and live together.